Federal Government To Spend Up To $1.5 Billion To Improve Access To Drugs For Rare Diseases

Federal government to spend up to $1.5 billion to improve access to drugs for rare diseases

The Canadian Press

Making Canada’s $1.5 Billion Rare Disease Drug Strategy Work for Patients

Canadian Cancer Survivor Network

Durhane Wong-Rieger: Access to Essential Medicine for Rare Diseases

Rare Disease Day: China working to improve treatment, access to drugs

CGTN

Rare Disease Drug Development

U.S. Government Accountability Office (GAO)

Challenges in Rare Disease Treatment

Alliance for Patient Access

Drugs for rare diseases: Federal and Alberta govts sign agreement – December 5, 2024

cpac

Bill for greater access to orphan drugs.

Rare Disease Drug Development Education Series Trailer

National Organization for Rare Disorders (NORD)

PMPRB NEW Guidelines and Impact on Rare Diseases

Canadian Organization for Rare Disorders

From Data To Cures: Speeding The Way For Rare Diseases

National Organization for Rare Disorders (NORD)

Expanded Access for Rare Diseases

Orphan Drugs: Costs

Healthcare Triage

Investing $1.5b in A Sustainable Rare Disease Ecosystem Webinar

Canadian Organization for Rare Disorders

Rare Diseases are Not Rare – A Training on Rare Disease Resources

Network of the National Library of Medicine [NNLM]

Governments Spur Rare Disease Treatments - Part 1

National Press Foundation

Priority Four: Rapid access to drugs for people living with rare disease.

Metabolic Support UK

Julia Jenkins, EveryLife Foundation for Rare Diseases: Patient’s shape science-driven public policy

WCG

CORD & RQMO: Rare Disease Drug Strategy Webinar (English)

Canadian Organization for Rare Disorders

Orphan Drug Designation Webinar Video

The Lumis Group